As leaders of your local congenital heart support group, our focus has been and always will be “How can we provide the best support to families suffering with CHD?” Recently, the Pediatric Congenital Heart Association (PCHA), whose mission is to “Conquer Congenital Heart Disease,” just announced its plans to begin a support branch called the Congenital Heart Network. The creation of this network is a comprehensive approach which combines the support work that we all know and love with the important work of CHD advocacy, education, and research. After much discussion and consideration among the Mended Little Hearts of Cincinnati leadership team, and with the advisement from trusted Heart Institute colleagues, we voted unanimously to charter the Pediatric Congenital Heart Association of Ohio to fulfill the work of the Congenital Heart Network here in Cincinnati. We will continue to serve the patients and families of Cincinnati Children’s Hospital. Our leadership team believes there is power in numbers and that uniting organizations and collaborating together is the most powerful and effective way to impact the entire CHD community. We believe having one voice is the best way forward for all CHD patients both locally and globally.
Through the Congenital Heart Network, we will continue to provide care bags, support, education, resources, and social events for CHD families of the Greater Cincinnati area. We will maintain support to the whole CHD community including prenatal diagnoses, adolescent and adult patients, and bereaved families. In addition, we will expand our services to include advocacy and more educational opportunities. Our commitment to serve CHD families of Cincinnati has remained unchanged.
This transition does mean, however, that we will be dissolving our Mended Little Hearts chapter including our website, e-mail list, and Facebook page. If you would like to receive future communication and be a part of this exciting new opportunity, please respond to this e-mail to give us permission to add you to our new e-mail database. You can also follow us on Facebook through the Heart Families of Greater Cincinnati page. New contact information will be updated soon.
Thank you to everyone who has contributed to our support group over the last 6 years. It has been an amazing journey and we are excited for what the future holds! We look forward to continuing the tough work of “Conquering Congenital Heart Disease” in 2017 with you!
Tabitha Donner, Leslie Sams, Elizabeth Schurrer, Jessica Vela, Jamie Swartzel, and Emily Lowe
Pediatric Congenital Heart Association of Ohio
Cincinnati Chapter Leadership Team